*****On your 7th Birthday, signing "thank you" for a present.
Wow.
Just...wow.
ONE boy with Microcephaly, TWO typical siblings, THREE deep breaths...
This is exactly the kind of thing that hits me out of the blue sometimes, and makes me realize that my thoughts about microcephaly are never very far away.
Max LOVES wearing his Cubs visor.
The cottage we stayed in is set back from the main road a bit, with a sidewalk, then boardwalk path, and then a flight of stairs leading to the front porch entrance. The dock and beach area are situated directly on the other side of that main road. At one point we realized Max had left the house (where some of us were) and come to the beach (where the rest of us were) all by himself. Gah!
I didn't see it happen, so I have no idea if he stopped and looked for cars before crossing the road or not, but I noticed that several times when we walked across together, he DID seem to remember that we had to stop and look. His uncle gave him a gentle-but-stern lecture about not crossing the road by himself, and he nodded and nodded and said "yah!" And then we sharpened our watch and made sure we verbally "handed it off" when done. (The tricky part here is to announce an impending doze before it happens...)
Now even though I do NOT want him to cross roads alone, it still is a warped type of progress. There was a time when he would have darted out into the street repeatedly, oblivious to danger. There was a time when he refused to hold hands, and leading him was very difficult. There was a time when he would have gone to some other family's beach spot, intrigued by a toy or snack he spotted there. But this year, he knew where to go, he knew how to get there, and he safely held hands and went with an adult every time but one! That is progress.
This photo captures an imaginative moment Max was having. He held this rock, signed "cracker", and then held it to his lips and pretended to eat it. He was pretty pleased with himself and insisted Grammy & I watch his little game. That same afternoon, he also picked up a hand-sized rectangular rock, held it to his ear, and said "Eh-oh?" as though answering a phone.
Max doesn't generally engage in pretend play, except for imaginary telephone conversations (well, and the let's-pretend-we're-sleeping-and-then-I'll-poke-you or the let's-pretend-you-can't-see-me-and-then-suddenly-you-can! type of thing), so pretending one item IS another item -- when they do not look the same and are not usually used to represent each other -- was definitely a noteworthy activity.
Grammy took along this incredible bubble-making wand. Max watched the other kids use it for a long time, and then tried it himself. He knew the loop end needed to be dipped in the bucket each time, and he knew the sliding piece needed to slide at some point (to open the loop), and though he had trouble doing it all in the correct order each time, he managed to produce bubbles the first few times he tried. His excitement caused him to mix up the steps, then, but after some hand-over-hand assistance, he was able to do it again.
Max's favorite pastime was sitting in the hot sand. He scooted through it on his knees, and slid his hands around and sifted sand for hours each day. He even seemed to enjoy the heat of it, preferring to sit and "sand" (yes, it's a verb now) rather than cool off in the lake. I really can't think of any other activity he willingly engages in -- independently, quietly, contentedly -- for such extended periods of time. Truly! I read books, dozed, had conversations...it was very calming and peaceful for BOTH of us.
Of course, Max also had great fun with all those people around. He is incredibly social and loves to have personal attention from someone. (And with 12 other people in the cabin, that wasn't too hard to find!) The other kids are all old enough now to interact positively with him and help keep him engaged. While some times they were clearly humoring him, other times he was simply one of the gang.
By the end of the week, Max was insisting on specific people for specific activities (lots of snuggling-based games with the aunt pictured below and a water toy Toss & Find game of epic proportions with his youngest cousin), and was verbalizing a version of each person's name. He had a blast.
On the last night, Max insisted on sitting at the kids' table instead of with the grownups. Though my mind immediately jumps to spills and mess and little ingestion of food, my heart knows the sheer beauty of that request.
After eating that meal, we all walked down the road to get ice cream. I ordered for the 4 older kids and then we stood at the counter waiting. The cones were HUGE (And messy. And we were leaving shortly. And he doesn't usually eat his food, anyway. And Is my cup really always half empty??!), so I didn't order one for Max. I figured he could just have a few bites and be satisfied.
But Max had a different idea about that. He wanted ice cream, too. Blue ice cream! He stood at the counter, just barely peeking over the top of it, trying to get the ice cream server's attention and signing and saying "booo" (blue). He was very polite, very appropriate, very persistent, and very independently trying to state his wishes and place an order. It was a proud moment, indeed. And while I know all the reasons in MY mind for not ordering him his own cone, I felt incredibly humbled. He wanted ice cream, too.
Puzzle #1.
(Answer, ??)
For the record, I really have no idea, but I went with the pull-up...and 5 minutes later it happened again. Personally, I suspect one should always favor the odds that come with leak-proof fabrics, particularly when paired with the sanitary benefits of rip-away Velcro sides and disposability.)
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Puzzle #3
(Answer, 5 minutes previous to typing Problem #3.)
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Yep, been there, cleaned that. My computer time is officially over for today.
But guess what? -- SCHOOL AGAIN TOMORROW!
I'll be back. (cue maniacal laughter)